Monday, April 10, 2017

A silent journalist? What next?

No, this reporter was not taking a pizza order from
Franklin D. Roosevelt Jr. at the U.S. Capitol.

Well, yes, I admit under questioning that I enjoyed a suite at Mar-a-Lago at a time when Donald J. Trump may have been building towers with a child’s erector set. It was about the time of my first visit to the White House, too, but I was there because I was a young reporter. The only newspapers I ever owned I bought for a nickel a copy.Edward F. Hutton, the stock broker who invited me to the home he and Marjorie Merriweather Post built in Palm Beach, did not know that my bedroom suite in his home was larger than my basement apartment, where there wasn’t even a butler. I think Hutton would have voted for Trump, but I’m not so sure about the 40 servants who kept Mar-a-Lago dust-free and hospitable.

Newspaper reporting was fun most of the time, except maybe at the coffee machine at the Pittsburgh Sun-Telegraph, a smoky jewel of the Hearst empire in the days before an Australian fellow became the news emperor. There was foxy news, but no Fox News, in the late 1940’s.

Neither was there anything called multiple system atrophy. The disease was around for quite a while, but it was treated as three separate ailments. It wasn’t much more than 15 years ago when my neurologist diagnosed sporadic olivopontocerebellar atrophy (OPCA), which is now called multiple system atrophy (MSA). Same dizziness, same pains, same tumbles, same tendency for patients to talk about it whenever they can corner a listener. Same all of that but they were known as three diseases. Diagnosis takes time. There’s plenty of time because the disease has no cure.

Now that I’m 92 I still enjoy life with my daughter Marie and son-in-law Mark Veldman. Living with them, and being in close contact with son John and his wife Pam, along with son David and his wife Toni, six grandchildren and a great-grandchild expected soon, is the best medicine.

MSA, which some say was invented by the Marquis de Sade, whose name inspired the word sadism, is said by others to have been invented in an overheated cellar pungent with sulphur fumes. MSA sharpens arthritis in people’s fingers, makes feet shuffle, trip and puff up with gout. It does noisy things inside heads, interferes with the swallowing apparatus, sneaks in a Jeopardy memory game that has neither questions nor answers. And so on.

Thank you for reading this far, and thanks for your friendship. MSA has imposed low speed limits on everything its impatients do. I used to get fully dressed faster than I now pull on a pair of socks, and computer keyboards mock me when I start touch-typing. My notes on Facebook and Wall’s Paper are switching from Central Standard Time to MSA Saving Time. I’ll miss making greeting cards and tuning in regularly to Facebook. Every once in a while when you feel a mild thunk in your head you’ll know I’m thinking of you.

1 comment:

Peter weller said...

I was diagnosed in November 2007 with Parkinson's Disease. I have left side tremors, balance and gait issues and some non-motor symptoms:  quiet voice, some cognitive decline, small handwriting. I am currently on Sinemet for tremors and Cymbalta for neuropathy related to diabetes and previous chemotherapy. It was on my 25th anniversary of surviving breast cancer that I got the PD diagnosis. I am 69, retired, single woman sharing a house with my sister.  I like to read, quilt, and crochet. I have been reading up on PD.  Until I read too much and it scares me.  Then I put it away until I calm down and can research it some more. I need advice and some direction. I searched further, visited Parkinson’s websites, blogs. I find info about someone having the same symptoms. I was really determined. Fortunately for me, I stumbled on a testimony of someone who had Parkinson’s for several years and was cured through Herbal medication. I read awesome stories of people whose condition were worse. I was not a fan of Herbal Medication, because I once believed that they have not researched it enough. But due to numerous testimonies  I was more than willing to try it…. I contacted  Dr. Fabien, and I purchased the medicine and used just the way doctor instructed. Its a thing of joy to come back and make my review.. It became a miracle for me within 7 months. The herbal medication worked without any trace of side effects on I’m…. totally free. I have been cured for Parkinson’s. I was a shocking experience with the medicine. I never knew I will be free for Parkinson’s disease.  Email or